Day 3
Today was supposed to be our free day, however we got a phone call asking us to be at the hospital at 1pm for Liam to have an ECG – which is an ultrasound to have a look at his heart.
Before that we met a special guest, Ronald McDonald himself! He popped in for a brief visit which Liam and Ashleigh thought was pretty cool.
Then it was off to the hospital for the ECG. Liam wasn’t too impressed with the cold gel but other than that was pretty relaxed about the whole thing.
Our nurse for today, Angela, then showed us what is involved with putting in a portacath which was a bit of an eye opener. There is a whole lot of stuff that sits in under his skin, but which makes it alot easier for him to receive the drugs and can stay in there for up to 8 years!.
We then got to disappear, but had to stay close by at R.Mcd house as we were waiting for a call to come back and see the surgeon. Dad took the girls to QEII pool where they had a marvellous time, Liam stayed in the teenagers room playing playstation for the afternoon which meant that Jasper and I could get some study done.
We got a phone call about 6pm asking us to go back to CHOC so popped over there and briefly met with the surgeon who will be taking the biopsy tomorrow. Tell you what he is getting tag teamed by some pretty impressively qualified people!
Thats all from us today
love
SROJALA
April 22, 2008 @
Dear Rebecca and Liam
We think about you and pray for you every day. It is really neat that we can hear from you too every day on this magical internet, so that we can be part of the journey with you and Liam.
Give our love to our other 5 special people who are down there with you!
Love Jackie & Ray (Gran & Papa) x x x x x x x
April 22, 2008 @
Hi all – shame about not having a free day today but Orana Park will wait!! Stay strong everyone and look forward to catching up again soon. Smiles and sunshine heading your way!! Nic xx
April 22, 2008 @
Good luck for tomorrow! Your quilt is taking shape Liam, still a wee way to go, but it’s going to be awesome.
April 22, 2008 @
Hey Bec’s, Liam, Ashley and Team. We are waving here from Auckland!! It is so great that you can keep us in the know each day. Seth keeps asking to visit Liam and Ashley (mum can we go to see the boy and girl, Liam and Ashley with the computer I really like them) after our last visit with you Bec’s, he has not stopped talking about them. Its hard to explian we can’t just pop down the road to your house and that its a big drive/flight!! Enzo had to have his first hair cut at 10 weeks he he, still looks like a little rocker!! I will keep checking in. All our love Nicole, Andy, Seth and Enzo!
April 22, 2008 @
Becs, Liam and Ashleigh (SROJALA),
Keeping up with the daily updates and wishing I was there to help. Think about you continually and feel so helpless. All my love,
Stoney – Afghanistan
April 24, 2008 @
Hi Becs
Just to say we are thinking of you all and especially Liam. Keep you great spirit up and remember all the people that are sending you positive thoughts and love and wishes!! Take care, Libby, Brian, Charlie & bump xxxx