In May of 2006 we lost Matt, Liam's Dad after a courageous battle with a brain tumour, he was 34 years old. In April of 2008 we got the devastating news that 7 year old Liam had an extremely rare form of cancer in his sinus cavity. This blog is where we can update you on Liam's progess with his brave battle. "If children have the ability to ignore all odds and percentages, then maybe we can all learn from them."

Day 217 – Monday 24th November

Filed under: 1 — Rebecca at 7:15 pm on Monday, November 24, 2008

Ashleigh had a wonderful time at Siblings camp over the weekend.  We arrived at 1pm on Sunday for the presentation and to pick the kids up and were treated to singing, introductions from all the kids and a slide show of the weekends events.  One of the comments that Marg (from CCF) said was that she was very impressed with the children who overcame their fears, whether it be heights or of water to give an activity a go.  The slideshow was fantastic and there was a couple of beauty photos of Ashleigh – one bouncing high like a starfish on the trampoline and another flying off the end of the waterslide.  I was very impressed with the waterslide one as it is very high, very fast and lands you straight into the lake, so I think Ashleigh was one of the ones Marg may have been talking about!  Ashleigh was very proud to tell me that she had given it a go.  The leaders did a fabulous job of looking after the kids, and all the CCF staff, Marg, Sally, Sally B and Alison amongst others, along with the Canteen support crew really outdid themselves.  It was an absolute privilege for Ashleigh to go, and she is already gearing herself up for next year!  In farewell they sung us the special sibs camp song which includes the words “specially important brothers and sisters”, which really was the focus of the weekend.

Liam and I spent most of Saturday at the Kapanui School gala, wandering around in the heat entering competitions like – how many jelly beans in the jar, how many balloons in the car etc.  I entered a raffle where Liam chose the number and we won a potted chrysanthemum, I will see if I can keep it alive for more than a week!  I also ended up making ice-creams, and thanks to the beautiful day we had a constant stream of punters.  I think the school will be very pleased with the results of the day.

Liam and I then headed into Wellington to spend the night with Jasper and the girls.  We were very happy to witness the Kiwis win the Rugby League world cup, especially as we beat the Aussies to get it, and then see the All Blacks beat Wales.

After picking up Ashleigh we went down to the Waikanae Pools to cool down abit as it was another very hot day, and then once they both got into bed about an hour later both of them were asleep before their heads hit the pillow.

Liam and I went back into Wellington today to finally pick up his splint for his leg.  It is a long piece of plastic shaped sort of like a half a boot, and will hopefully assist with getting his foot back into the correct position and stop him rolling his ankle.  He has also got a fabric ankle support that he will wear to school and while he is playing sport which give it the support it needs. 

Thats about it from us for now.  We are off to Taupo on Friday for the Taupo Cycle Challenge (I’m only doing 80k this year, haven’t done enough training for the whole 160), the kids are riding the last 5k’s with us and are very excited so will post again next week with some photos.

Take Care




November 24, 2008 @   

Enjoy the event at Taupo


   Aunty Sarah

November 27, 2008 @   

What a fun time you’ve all been having! I love El Rancho – so many lovely memories of Matt & Me going on the flying fox, waterslide etc as kids…
Really looking forward to seeing you soon – only ten days till I fly out now! Will be with Mum & Dad from the 19th December through to New Year.
See you soon
Lots of love xxx


   Aunty Linda & Uncle Barry

November 28, 2008 @   

Best of luck at Taupo,glad to hear everything is going well.
Love to you all.



December 5, 2008 @   

Awesome Ash!
You are a star! So good to hear about you conquering your fears.
love to you all and Merry Xmas.

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