LIAM'S JOURNEY

In May of 2006 we lost Matt, Liam's Dad after a courageous battle with a brain tumour, he was 34 years old. In April of 2008 we got the devastating news that 7 year old Liam had an extremely rare form of cancer in his sinus cavity. This blog is where we can update you on Liam's progess with his brave battle. "If children have the ability to ignore all odds and percentages, then maybe we can all learn from them."

Day 176 – Surgery number 5

Filed under: 1 — Rebecca at 11:38 am on Wednesday, October 15, 2008

I have good news to report!  Liams surgery went really well,  after the initial hiccup of getting his portacath accessed.  He had decided to go with the needle this time instead of the gas as it distresses him so much.  Unfortunately he had worked himself up into such a state that he had convinced himself that it was going to hurt, even though Marcella (District Nurse) had been accessing it with no problems at home.  Indu the anesthetist was absolutely fantastic, she is so very patient and in no rush at all, which was a good thing as it took us half an hour to get him calm enough to get the port accessed!  She is wonderful and I can’t speak too highly of her.   I promised him a million dollars if went he counted he could get to 6, I am going to renege on that deal as he counted too fast and Indu said they were going to set me up, unless of course I win the 30 million on Satuday.  Figure we are in with a good chance as I am sure our future is paved with gold (or lots and lots of dollars!)

The surgery went really well, Charles has adjusted the titanium plate downwards and a little bit forward (or was that backwards can’t remember) and had a good look around.  Again I can’t speak highly enough of him as well, he is such a reassuring presence and I always know he is in safe hands with him. There is absolutely no sign of any regrowth of tumour, so they also took out his portacath.  Yay!!!  It is really nice to be able to have some good news to report for a change.  I am so used to hearing bad news that it was a bit of a shock to the system to get some good news!  This will be the last surgery for quite some time, which is great as I think the poor buggar has had quite about enough.  When I think about what he has endured in his short wee life with losing his Dad and having to go through all of this I figure he has great things in store for him in the future.   

They will obviously keep monitoring him closely with 6 monthly CT scans and 3 monthly chest xrays, as the risk is still there, but hopefully with each passing month and clear scan, he can get back to being a normal kid. 

Liam is now sitting up in bed quite happily making his latest Lego acquisition, a secret agents truck type thingee.  All things going well we should be home tomorrow but he will take it easy for the rest of the week, unless I am feeling particularly mean and might send him back to school!

The staff here are great as usual, we met a nurse in the theatre reception who has been following this blog, (hi!, forgot to ask your name!!) and have been looked after by the fantastic nurses yet again.  Liams nurse at the moment Tamara and I have just spent the last 20 minutes or so talking about shift work and how much we hate it!

Thanks for all the messages, its nice to know people are still reading the blog and thinking about us. 

Love Becs, and the mighty lego building Liam



10 Comments

486

   Lea White

October 15, 2008 @   

I’m so pleased for you! That is wonderful news and must be so great to have no port. We’ll still have ours probably for another year, maybe a bit more.

So lots of prayers, thoughts, fingers crossed that you will have an easy road going forward!

Keep well!

Lea White
http://whitesinnz.blogspot.com

487

   Margaret Stevens

October 15, 2008 @   

The absolutely best news we were hanging out for. (everyone at Barrons too!)Hugs from us.xx Mum and Ian

488

   Alli Thomson

October 15, 2008 @   

I am so pleased for you, what wonderful news, you couldnt ask for a more positive outcome, and no port…yeah!! Go out and buy a lotto ticket and have a wee bourbon to celebrate!
Keep smiling
Love
Alli

489

   Aunty Carol&Uncle Baz

October 15, 2008 @   

Wonderful News Liam,with all the positive thoughts you will go from strenght to strenght.Love also from all of Top 10 Richmond

490

   The Stones

October 15, 2008 @   

Thats fantastic news Toddies! We have been thinking of you all day so good news is the best type of news.

Stay strong, all our love, The Stones xxx

491

   Donna & Stan Hooper

October 15, 2008 @   

Fantastic – so pleased to hear the good news. Hopefully life will be a lot smoother from now on!

Donna and Stan

492

   Aunty Sarah

October 15, 2008 @   

YEAH – that is fantastic news! I’m so glad and really looking forward to seeing you all in Dec.

Lots of love

498

   indu

October 18, 2008 @   

Hey Liam

You seem to have done a runner on me. Couldnt find you when I came to see you at the end of the day!!!! You must be doing well!!!! Good to hear you were.
Take care hon and have fun. And ofcourse dont forget my share of the million dollars you are going to get from mum!

I

Indu

512

   Emily

October 30, 2008 @   

Hey guys!
Just sending love your way!
Big hugs from Londontown!
If Liam and Ashleigh want anything typical London then let me know and I’ll post it back!
xxxx

513

   Emily

October 30, 2008 @   

Oh and awesome news!!!!!!!!!! wooop woop!
I am so happy for you guys
xx

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