LIAM'S JOURNEY

In May of 2006 we lost Matt, Liam's Dad after a courageous battle with a brain tumour, he was 34 years old. In April of 2008 we got the devastating news that 7 year old Liam had an extremely rare form of cancer in his sinus cavity. This blog is where we can update you on Liam's progess with his brave battle. "If children have the ability to ignore all odds and percentages, then maybe we can all learn from them."

Day 101-Final Diagnosis

Filed under: 1 — Rebecca at 12:49 pm on Friday, August 1, 2008

The day we have been waiting for for 101 days has final come.  Liams tumour has been confirmed as a:

Low grade malignant myoepithilial carcinoma.

This is incredibly rare and the only documentation regarding these types of tumour that the oncologist has been able to find, documents 29 paediatric cases worldwide.  I am still having to make the tough decisions regarding radiotherapy, so am busy gathering all the information I can lay my hands on so we can make the best informed decision possible.  The oncologist is also going to get liams file together and send it to the US, Melbourne and Sydney to get the thoughts from people he values the opinions of.  Maybe once we have all this information we can make the best decision in the circumstances.

I am off to the Child Cancer Foundation tomorrow for a bit of a Mums pamper day with brunch, makeup and hand and foot massages and the kids are off to the movies with their Papa.  I think they are seeing Kung Fu Panda, so hopefully they don’t try to karate chop me when I pick them up.

 Have a good weekend

Becs



5 Comments »

415

   Nic, John & Steven

August 1, 2008 @

Enjoy your pamper day Becs, lord knows you deserve it!! Will be thinking of you xx

416

   Glenn, Karla, Brock and Blaise

August 1, 2008 @

Hi Sis, was wondering if they will have Chardon at the “Mum’s Pamper Day” or are they not that posh? Hehe, love to all (including Steve!) xoxox

417

   The Stones

August 1, 2008 @

Try and relax and enjoy the “pampering”. It is good that you have something “real” to work with now rather than the guessing that has been going on for a while now. We are here if you need (not that we need to tell you that)! Stay strong Becs, Liam and Ashleigh along with Jasper and the girls.

418

   sirgary

August 1, 2008 @

Our thoughts are with you

419

   Shanell

August 2, 2008 @

Hi Becs,
Fantastic to see you today and tell your friends that we were much *posher* than chardon!!
Reading Liam’s journal, the journey you’re all travelling and your ability to be so incredibly strong just blows me away!
We all cope simply because we have to … but it doesn’t make it any easier.
Know that you have a support network with us cancer mums and should you ever need a shoulder to cry on or a sounding board, we’re just a phone call (and a 30 minute drive for me!) away.
Take care xx

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