Day 12
We are heading home to Wellington today. Although I dearly want to go, it means that we still do not have a definitive diagnosis. We met with the Doctors today who advised that the biopsy has now been sent to Australia for them to have a look at. They said all the pathologists here have had a look at it and know what it is not, but are still having trouble actually pinpointing exactly what it is. This is incredibly disappointing as we obviously would have liked to be well into the treatment this many days out from the original diagnosis.
There is a strong possibility that the tumour is non-responsive to chemotherapy which is not that great. This means that the only option will be surgery which is very invasive and will involve several surgeries as Liam gets older and his bones grow.
If the tumour is responsive to chemotherapy we will be back down here next week to begin treatment. Although this takes us away from home and chemo is not going to be that nice, it will shrink the tumour and the surgery will not be quite as traumatic.
Our flights are being booked for early this evening and Liam and I will head out the coast later tonight.
Becs
x
May 1, 2008 @
Home is a good place to be while you are in limbo.Liam dont forget to cheer the Crusaiders on as well as the Huricanes, so long as they arent playing each other.Look foreward to some positive results Lots of love from us all. xx
May 1, 2008 @
Enjoy some time at home guys
Luv
T & S xox
May 1, 2008 @
Hello, we have been wanting to touch base and weren’t sure the best way to go about it, this is a brilliant idea. Hey we are thinking of you all. Please feel free to ask if there is anything we can do to help out in any way, happy to have the girls,… Catch up soon, Cheers Charmaine, Abdul, Corrine and Shivaun
May 1, 2008 @
Nice to be home guys. Thinking of you all and fingers crossed for some positive results for you. Enjoy the down time you have and keep smiling. Take care luv Nic xx
May 1, 2008 @
I have everything crossed that the Australian pathologists can diagnose it as quick as possible. Just let me know if you want me to give them a hurry up over here
Mel xx
May 2, 2008 @
As Aunty Carol said, home is a good place to be at this time. We very much hope the next few days offer a clearer path for you all. Thinking of you heaps, and hoping you all are enjoying being back in familiar surroundings for a spell. Liam, are you going to be wearing the Crusaders jersey at 7:30pm tonight. Lots of love, and lets hope positive developments arrive soon.xxxxxx
May 12, 2008 @
Thinking of you all as we follow your journey.
I’m worried Kieran or Wendy will get their hands on that special Crusaders jersey!
Every good wish Lorna and family