LIAM'S JOURNEY

In May of 2006 we lost Matt, Liam's Dad after a courageous battle with a brain tumour, he was 34 years old. In April of 2008 we got the devastating news that 7 year old Liam had an extremely rare form of cancer in his sinus cavity. This blog is where we can update you on Liam's progess with his brave battle. "If children have the ability to ignore all odds and percentages, then maybe we can all learn from them."

Day 4

Filed under: 1 — Rebecca at 9:51 pm on Tuesday, April 22, 2008

Today was the first of the really big days for Liam to contend with.  We were required at the hospital by 10am and things starting happening from then.

 We were spoken to by numerous amounts of Doctors ranging from Anaesthetists, plastic surgeons, registrars for different things, paediatric oncologists to name a few.  Of course the junior doctors are all striking so we had the best of the best! 

Liam was taken into theatre with me dressed up in my suit and hat and booties again.  He was so incredibly brave as the gas distresses him a bit.  He spent his time thinking about his special memory which he chose as the Big Thunder Mountain ride at Disneyland last year.  He was picturing Ashleigh screaming and us getting wet!

He came through the surgery very well, he now has his portacath in which is being referred to as “portie”.  It has been accessed and he also has another line in his arm so will get all further meds through there.  He has an incision in his neck which is about 2 centimetres long where they took out a lymph node and used the same incision to insert portie.  He also had his lumbar puncture, bone marrow aspirate and another biopsy taken so he is a bit battered and bruised.  He is all tucked up having a sleep covered by his new hurricanes jersey as there are too many crusaders fans down here.  I knew he was ok when I asked him if he was in any pain and he said no, and when was he going to get his nintendo!!

Will sign off for today, Port of Lyttleton are into Ronald McDonald to cook a roast chicken so am looking forward to feasting on that when Jasper and the girls bring it over. 

 Thank you all so very much for your wonderful messages, I have read them out to Liam and he (as are we all) is just blown away by the support. 

Becs



29 Comments

64

   rose,matt and charlotte

April 23, 2008 @   

Wow Liam, it sounds like you have had a really big day and have been so brave. We have the photo of you finishing the Taupo cycle ride on our PC. Hope Mum enjoys her roast chicken. Thinking of you lots and lots. Love Rose, Matt and Charlotte

65

   Cousin Jack

April 23, 2008 @   

Hey Liam!!
A tough day for a tough guy!!! I am in Hanmer with my dad and am glad to hear that you aren’t feeling the pain!!! Hope you sleep well tonight!!
Love JCM
Aunty Becs forgot to mention that you whipped her in Badminton the other day!!! secret is out now ….

66

   Nic, John & Steven

April 23, 2008 @   

Well done Liam – what a brave boy!! Back into the nitendo just as soon as! Hope your dinner was nice Becs sounds nicer than what we had!! Sounds like you are all well taken care of there by wonderful people – you are in the right place. Night night hope you all get a good nights rest. Dont study too hard you two!! Nic xx

67

   Aunty Sarah

April 23, 2008 @   

Liam – you are the bravest! I love you lots, kisses & hugs xxxx

68

   Hayley, Alan, Niamh and William Moule

April 23, 2008 @   

Hey Liam.

Reading your Mums notes on your journey. Sounds like you have a great place to stay. Hope you will be back here and at school again soon( as if you really wanted to hear that!!!). Stay happy and keep pestering Mum for lots of things….or even better annoy the nurses!!! thats is real fun….

We will read every day.

69

   stuart

April 23, 2008 @   

You don’t know me, but I run the Blogtown site and I’ve been reading your updates. I must say that your boy Liam sounds like a strong lad – a real inspiration. I wish you all the best.

70

   Penny

April 23, 2008 @   

A big day indeed !! Dan and Zac are very pleased to hear a HURRICANE has landed in Crusaders Country xxx
Love Pen, Dan and Zac

71

   Angela, Andrew, Sam, Josh, Emily, William and James xxx

April 23, 2008 @   

Hey Liam,

What a big day today. You really are pretty amazing!! We are really lucky to be able to have this site to look at every day cos we think of you every day and the kids keep asking how you are doing and they just hope you get through this as quick as possible. How Stephen and Becs are managing to study I’ll never know – but it sounds like this place you are staying at is pretty cool!! Give those girls big kisses from us all with the biggest kiss from us for you. Big hugs to Mum and Stephen too.
All our love

72

   Penny

April 23, 2008 @   

Hey Stuart, thanks for running this site. It has really helped us all deal with this horrible event.

73

   Mike Tomkins

April 24, 2008 @   

Hi Liam (& Becs),

Mate – you have had a huge day! Sounds like you did us all proud though; I would have blubbered my way through everything (ask your Mum, she’ll agree).

Glad to hear that you showing the Cantabs how a Canes supporter handles the tough stuff though.

Take care mate,

Cheers

Mike, Hilary, Libby & Alex

74

   Margaret Stevens

April 24, 2008 @   

Well done Liam! You are a tough dude! Oy says don’t forget roosters rule and get better soon cause the Hurricanes could do with a good player right now. Love you lots Grandma & Oy

75

   The Stones

April 24, 2008 @   

It’s good to her that things went well yesterday. Heidi and I are thinking about all of you. I know that Dave is too (all the way from Afghanistan).

Liam, keep being brave and get everything you can possibly get from your mum at this time! :)

Love, kisses and hugs from The Stones. xxxxxxxx

76

   Todd, Jo, Kasey & Sasha

April 24, 2008 @   

Wow, you are so brave Liam. It sounds like you are coping with it very well. Just to let you know that Margarets daughter (you know Margaret and Mike from around the corner) well her daughter is Stephanie one of the teachers from Chelsea House. She said to say hello and good luck and she is thinking about you all the time. Good luck for the results of all that was done yesterday. Love to all

Todd, Jo and girls

77

   Derek and Helen Johnston

April 24, 2008 @   

Dear Liam, Joe and Nate were so sorry to hear you had to go to hospital. They wanted you to come over and do dive bombs in the pool. Nate kept writing letters to you but as he is only 5 and they were just scribble we didn’t send them. Boy are you going to have some really good morning talks to give the kids when you get back to school. We miss you all and your house is fine.
Much love,
Helen, Derek, Joe and Nate

79

   Tracey & Shamus

April 24, 2008 @   

Hi Liam, We have been keeping up with your visit to hospital and wanted to tell how brave you are. Shamus wanted to say Hi and knows your Dad is super proud of you everyday! Keep strong little man(and mum too:))
We think of you often guys
Love Tracey & Shamus
xoxoxoxoxo

80

   Emily Pearce

April 24, 2008 @   

Hey guys,

What a little battler you are Liam!
I’m am thinking of you guys everyday. It’s great to have these updates and know what’s happening.
It sounds like you are in good hands!
Sending lots and lots and lots of love and hugs and kisses your way.
Love coussie Emily

81

   Emily Pearce

April 24, 2008 @   

Oh and Liam,

I have some hook ups at Sony, so if there any games you have in mind that you want get Bex to email or txt me and I will see what i can do.
021364597

xx

82

   Glenys and Gus

April 24, 2008 @   

Becs, Lliam and co, Tammy showed forwarded your site to me and we are so impressed with everything you have done. We are really pumping for you all and so glad you have so much special support, you really deserve it. Lots of extra special wishes and thoughts to all of you. Love Glenys and Gus Evans.

83

   Great Aunt Moy

April 24, 2008 @   

Go Liam! You are an inspiration to us all.
But remember you don’t have to be brave all the time – just some of the time!
Thanks Becs for including all of us this way –
fantastic to be able to send positive vibes to you all and to know you are surrounded by loving
caring people.
Love and prayers,
Moy

87

   Carl, Jo , Jess, Holly McManaway

April 24, 2008 @   

Hi Liam
We’ve not met you, but my wife Jo and I got to know your mum and your Dad when we were teenagers – your Dad stayed over at our house the night of his 21st, and Jo used to work with him. We often think about your dad and remember the belly ache laughs we had with him. I’m sure you’re an amazing fella just like he was. Say hi to your mum for us. You are in our thoughts – sending you positive vibes and thoughts, Carl, Jo , Jessie and Holly McMananway

93

   Rugby Team

April 24, 2008 @   

Hi Liam,

All your team mates at rugby training tonight send their very best wishes, and hope you are back to play with us soon. We took a picture, so get your mum to check her email and print it out for you.

Love from

Finn, Thomas, Jayden, Findlay, Nate, Kaleb, Cody, Rowan and Zain (Waikanae U8 Rugby Squad)

94

   Peter Knight

April 24, 2008 @   

.. oh, sorry, I forgot to add my name to the rugby list.

Peter (coach)

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