LIAM'S JOURNEY

In May of 2006 we lost Matt, Liam's Dad after a courageous battle with a brain tumour, he was 34 years old. In April of 2008 we got the devastating news that 7 year old Liam had an extremely rare form of cancer in his sinus cavity. This blog is where we can update you on Liam's progess with his brave battle. "If children have the ability to ignore all odds and percentages, then maybe we can all learn from them."

Day 113 – The birthday

Filed under: 1 — Rebecca at 6:39 pm on Wednesday, August 13, 2008

Liam turned 8 years old today, I still find it hard to believe that I am old enough to have an 8 year old!  I can still very clearly see Matt holding this wee baby just after he was born.  I rung More FM birthday calls this morning and he was quite impressed to hear his […]

Day 111

Filed under: 1 — Rebecca at 8:01 pm on Monday, August 11, 2008

Just thought you would like to see Liam with his new haircut sitting with Coco.  What a handsome lad!  All is well, you can see in the photo that most of the swelling has gone down on his face, however his eye is still too high.  It is his 8th birthday on Wednesday which he […]

Day 108

Filed under: 1 — Rebecca at 7:13 pm on Friday, August 8, 2008

Not one to sit on my laurels I contacted the authors of the article that I was given to read regarding myoepithilial carcinomas.  It didn’t phase me one bit that they were Doctors working at a hospital attached to Harvard Universtiy!  I was amazed when they got back to me within a few hours.  They gave me a […]

Day 104- the decision

Filed under: 1 — Rebecca at 12:17 pm on Monday, August 4, 2008

This has got to have been the hardest decision I have ever had to make in my life.  I have agonised over it all weekend, changing my mind about every ten minutes.  I woke up at about 2am on saturday morning and decided that I was going to adopt the “wait and see” approach, but […]

Day 101-Final Diagnosis

Filed under: 1 — Rebecca at 12:49 pm on Friday, August 1, 2008

The day we have been waiting for for 101 days has final come.  Liams tumour has been confirmed as a: Low grade malignant myoepithilial carcinoma. This is incredibly rare and the only documentation regarding these types of tumour that the oncologist has been able to find, documents 29 paediatric cases worldwide.  I am still having to […]

Day 99

Filed under: 1 — Rebecca at 6:22 pm on Wednesday, July 30, 2008

The day got off to a very inauspicious start, with this storm we have been having the winds picked up my wheelibin and threw it against the lounge window, smashing the window!  I got a hell of a fright as I was sitting at the table studying and the dog took off up the hallway and hid […]

Day 97

Filed under: 1 — Rebecca at 4:50 pm on Monday, July 28, 2008

Liam had his CT scan today over at Hutt Hospital.  I picked him up from school at 12.30, slapped some emla on both arms (numbing cream) and headed off.  He was a little bit anxious about being jabbed yet again, but wasn’t doing to bad on the nerves side.  We were called in a short […]

Day 94

Filed under: 1 — Rebecca at 6:34 pm on Friday, July 25, 2008

I kept Liam home from school yesterday with his bout of the flu.  He spent the day tucked up on the couch under his blanket watching telly.  His cousin Madison lay on the other couch feeling just as sorry for herself as he was.   I sent him back to school today as he was feeling […]

Day 92

Filed under: 1 — Rebecca at 8:00 pm on Wednesday, July 23, 2008

I took Liam to Kapiti Health Centre today (formally Paraparaumu Hospital) where we visited the Paediatric Doctor whom we met at the original oncology visit in Wellington.  He had a look at Liam’s big toe which he hasn’t been able to straighten since the surgery.  The Doctor seems to think that one of the nerves has been […]

Day 90 – Back to School

Filed under: 1 — Rebecca at 4:27 pm on Monday, July 21, 2008

Liam’s first day back at school for quite awhile went without a hitch today.  He didn’t particularly want to go back as he said he has more fun at home and at school he has to work.  He wore shorts, but even though it was a sunny day I think possibly he wanted to show […]

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