LIAM'S JOURNEY

Liam, Ashleigh and I went into Wellington Hospital for bloods to be taken today.  He was a very brave little soldier, and only had a very small panic attack just before the needle went in, but allowed them to take three vials of blood.  These are being sent to Australia to identify whether or not he tests positive for a certain gene.  If he is positive then further tests will be done on his colon, and Ashleigh will also be tested to see if she is positive.  If she is then it is all about preventative measures, and then we will start to look at the wider immediate family.  These tests really could open a bit of a can of worms.

Liam has a fair bit of anxiety stored up which bubbles to the surface every now and then.  I found him in the bathroom on Saturday with what appeared to be a blood clot that had come from his eye.  When he saw me he started to cry which made the blood come from his eye, and was terrified that he would have to go back to hospital.  Once we cleaned him up I realised that it wasn’t anything major, I initially thought it was just the tube falling out, but I’m not sure.  I am certainly not concerned as his eye is not infected, not bothering him and looks great.  It did however bring home just how much the poor wee buggar has been through over the past 9 months.

Looking to the future, he is having a CT scan scheduled shortly and when that comes back clear (power of positive thinking!) I will give the blog writing a bit of a break as I will have nothing to report, but you can still follow our progress on the funrazor site.