LIAM'S JOURNEY

I have good news to report!  Liams surgery went really well,  after the initial hiccup of getting his portacath accessed.  He had decided to go with the needle this time instead of the gas as it distresses him so much.  Unfortunately he had worked himself up into such a state that he had convinced himself that it was going to hurt, even though Marcella (District Nurse) had been accessing it with no problems at home.  Indu the anesthetist was absolutely fantastic, she is so very patient and in no rush at all, which was a good thing as it took us half an hour to get him calm enough to get the port accessed!  She is wonderful and I can’t speak too highly of her.   I promised him a million dollars if went he counted he could get to 6, I am going to renege on that deal as he counted too fast and Indu said they were going to set me up, unless of course I win the 30 million on Satuday.  Figure we are in with a good chance as I am sure our future is paved with gold (or lots and lots of dollars!)

The surgery went really well, Charles has adjusted the titanium plate downwards and a little bit forward (or was that backwards can’t remember) and had a good look around.  Again I can’t speak highly enough of him as well, he is such a reassuring presence and I always know he is in safe hands with him. There is absolutely no sign of any regrowth of tumour, so they also took out his portacath.  Yay!!!  It is really nice to be able to have some good news to report for a change.  I am so used to hearing bad news that it was a bit of a shock to the system to get some good news!  This will be the last surgery for quite some time, which is great as I think the poor buggar has had quite about enough.  When I think about what he has endured in his short wee life with losing his Dad and having to go through all of this I figure he has great things in store for him in the future.   

They will obviously keep monitoring him closely with 6 monthly CT scans and 3 monthly chest xrays, as the risk is still there, but hopefully with each passing month and clear scan, he can get back to being a normal kid. 

Liam is now sitting up in bed quite happily making his latest Lego acquisition, a secret agents truck type thingee.  All things going well we should be home tomorrow but he will take it easy for the rest of the week, unless I am feeling particularly mean and might send him back to school!

The staff here are great as usual, we met a nurse in the theatre reception who has been following this blog, (hi!, forgot to ask your name!!) and have been looked after by the fantastic nurses yet again.  Liams nurse at the moment Tamara and I have just spent the last 20 minutes or so talking about shift work and how much we hate it!

Thanks for all the messages, its nice to know people are still reading the blog and thinking about us. 

Love Becs, and the mighty lego building Liam