LIAM'S JOURNEY

I took Liam into the Orthotics centre in Wellington today to be fitted for a splint for his leg.  They put a plaster cast on up to his upper calf which Liam said was very hot but was just like when he broke his arm (don’t remember them putting a cast on his leg when he broke his arm – ha ha) anyway, the splint will be made of plastic and will help to correct the position his foot is in and assist with the strength in his first two toes.  It will be worn at night so won’t hinder him during the day, thank goodness.

 Prior to the appointment we called into Ward 18 at Wellington Hospital and picked up all the courage beads Liam was owed.  He is now up to 100 and got his special milestone bead as well. 

I have received a message from the Clinical Oncologist who has had a reply from a colleague in Sydney who recommends a wait and see approach.  To tell the truth I am not sure how I feel about that.  It is very difficult to just wait and hope that if it comes back we will catch it early.  Part of me wishes that we could slam this bloody thing with everything in our power which is a “what if” I have always dwelt on after Matt passed away – should he have had chemotherapy at the time of radiation or should we have tried temozolomide etc etc.  Without a crystal ball I cannot answer any of the questions I want answered!  I guess, again, I will need to trust the Doctors.  The biggest problem I have is that he never showed any symptoms when the tumour was growing, it was only when it got big enough to notice the swelling that we figured something was wrong.  He will be having 3 monthly chest xrays and probably similarly spaced CT scans of the face.   We are seeing the plastic surgeon again next week so I dear say we will look at scheduling another surgery to drop the titanium plate.

Until the next post.

Becs