LIAM'S JOURNEY

Another week has rolled around already.  It is still freezing here, although the sun has been shining all day today.  The weekend was pretty miserable weather with the southerly, driving rain and wind preventing any outdoor activity for the most part.  We went into Wellington to watch the girls play netball on Saturday and got rained on watching Amelia’s game, but the weather held out for Olivias later on. (Jess played at 8.30am so we missed that one, although she had a good win)

 Our friend Mick in London generously gave both the kids some British Pounds to spend, so we transferred the money over and they went on a wee shopping spree at Toyworld (although they were lamenting about not being able to go to the coolest toystore in the world – Hamleys in London!)  No surprises what they bought – Lego!  The rest of the afternoon and evening was then spent building their respective items.

Sunday was spent inside in front of the fire mucking around and doing odd jobs.  The highlight of my day was being able to have a spa in the rain after the kids had gone to bed.

We are back at the hospital tomorrow for a clinic visit, and I am expecting the pathology results to be back however will not be surprised if we don’t hear anything still.  I am very nervous about going and it churns my stomach everytime I think about it.  It will have been 5 weeks since the surgery on Wednesday, I’m not sure where the time goes. 

Some days its hard to keep smiling when I look at my beautiful boy and his sore eye and swollen face.  He is maintaining his weight and filling him up with complan milkshakes seems to be doing the trick, but he still struggles to open his mouth more that a centimetre or so, and is getting frustrated with not being able to eat properly.

Will report tomorrow after we have seen the surgeon.

Love

Becs