LIAM'S JOURNEY

In May of 2006 we lost Matt, Liam's Dad after a courageous battle with a brain tumour, he was 34 years old. In April of 2008 we got the devastating news that 7 year old Liam had an extremely rare form of cancer in his sinus cavity. This blog is where we can update you on Liam's progess with his brave battle. "If children have the ability to ignore all odds and percentages, then maybe we can all learn from them."

Day 40 – The day after yesterday

Filed under: 1 — Rebecca at 5:42 pm on Thursday, May 29, 2008

Liam spent the night in the ICU after his huge day yesterday.  He was kept mildly sedated overnight, but every now and then he would sit bolt upright and want to get up.  He had a good night and was monitored closely and had good blood flow to the site.  I sat with him until about midnight and then nipped away to have a couple of hours sleep, while Jasper stayed at the hospital as he could sleep standing up if required!

The doctors arrived to see him about 7.30 this morning and were quite keen to wake him up.  They took the breathing tube out of his mouth and he woke up very quickly.  He was a bit sleepy and very sore but he is such an incredibly brave little man.  His leg is wrapped in bandages, his face is very swollen and he can’t open his right eye, and his first word  was “ouch”.  He hasn’t lost his sense of humour or his manners either, as he was messing with the physios holding his breath when they were trying to check his lungs.

He was transferred into the Plastics ward around 4pm, and will remain here for the first couple of days and then may be transferred into the childrens ward.  We have our own room and he has been playing a wee bit of nintendo and trying to build the lego crane that Jasper bought him today.  As he only has one eye he is finding it difficult and although wants to do stuff can only manage about 3 minute stints before lying down for another rest.  He is not allowed to eat anything until his mouth heals a bit which he is absolutely gutted about.  He is being fed through his nasal gastric tube which will hopefully begin to cure his hunger pains soon but he would much prefer a plate of spaghetti bolognase. 

Jasper has taken over the lego building so it will be interesting to see how that endeavour goes! 

All in all Liam is doing remarkably well, the Doctors are very pleased with him and hopefully he continues on this path.  We are obviously waiting for further pathology reports on what the tumour is, and should get those in 2 to 3 weeks which will give us an indication on the next step.

Thats all from me for now, off for some bacon and egg pie which Julia kindly made for us (without peas!) it is absolutely delicious thank you!

Becs, Jasper and the mighty Liam.



9 Comments

312

momtopia   Bridget and Family

May 29, 2008 @   

Glad to hear all is well. I would be bummed about not being able to eat too. Good luck to Jasper on the lego building. As always you are all in our thoughts.
Love,
Bridget and Family

313

triggsy   Mike Triggs

May 29, 2008 @   

Good to hear he hasn’t lost his sense of humour. Liam you are one gutsy little kid. Keep it up!! Becs and co, my admiration is beyond words for your determination and perseverance!!

314

danzac   Penny

May 29, 2008 @   

You know what buddy..as you are so brave Dan and Zac are going to cheer for the Crusaders on Saturday night !!!! and even wear red and black !!! xxx Dan and Zac & Pen Bowman

315

todfam   nana

May 29, 2008 @   

Hey Liam how pleased we are that yesterday is behind you, you are certainly brave and doing so well, I just want to give you a big hug and kiss, so pretend i did ok! Becs you are doing so well too hope you don’t get too tired. Let us know when it will be ok to come in and see you all. Nana

316

kmv2302   jess

May 29, 2008 @   

Hey Becs
miss you and coco and liam and ashleigh so much hope liam has recovered from his oporaction how is coco? miss you soo much and look ford to seeing you love you heaps xoxoxoxoxoxoxoxo
love amelia,olivia,jess and mum

317

mikehilary.tomkins   Mike, Hilary, Libby & Alex

May 30, 2008 @   

Hi from Thailand guys,

Liam glad to hear that you got through the big day OK. We have been keeping track on how you are doing. I have a couple of extra meals for you Liam; alhtough Mum would say that I don’t need them.

Becs & Jasper, you guys have been amazing with this journey; taking each challenge as they come. Always a bed for the clan in Bangkok after this settles down a bit.

Cheers

Mike, Hilary, Libby & Alex

318

kate.martin   Kate Martin

May 30, 2008 @   

Hi Liam, Ashleigh and Rebecca
I am just in awe of you all. Such amazing strength, love and courage. You are an inspiration to us all. Liam, I just cracked up about you messing with the Physios. Brilliant! Hang in there young man – everyone is so proud of you. This is the first time I have blogged, and it took me a few days to work out how to comment (pathetic huh!).

319

ian.osland   Ozzy

May 30, 2008 @   

Dear Becs, Jasper, Liam and family

So glad to hear things went smoothly and Liam is back on the road to recovery. He has been inspirational with his straength and courage.

Let me know if you need anymore lego, my boys have grown out of it, I have plenty stored away to be used.

If you’re looking for a wee social blow out, the NBG is getting together on the 27th June, so it would be great to see you there!

Wishing you all the best, take care

Oz

320

rankavs   Aunty Ran and Uncle Donal

May 30, 2008 @   

Hey Liam,
We have been reading up on your blog everyday and thinking about you all the time.
Can’t wait to see you again when you are feeling a littel better and not so sore x x x

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