We have had a good week, Liam’s oncologist rung on Tuesday night, just to let us know that he hadn’t forgotten about us. I didn’t think he had as it had only been a week since we saw him! It just shows how dedicated he is and is out to help us find some answers. […]
Ashleigh had a wonderful time at Siblings camp over the weekend. We arrived at 1pm on Sunday for the presentation and to pick the kids up and were treated to singing, introductions from all the kids and a slide show of the weekends events. One of the comments that Marg (from CCF) said was that she […]
I attended Kyah’s funeral in Johnsonville today. It was a beautiful service but as it was always going to be a tough one to get through. Shanell and Jason chose some lovely music, including Sarah McLaughlan (both Penny and I had her music at the boys funerals) and somewhere over the rainbow. They had a gorgeous collection […]
After a long fought battle, beautiful wee Kyah passed away peacefully at 11.55am this morning, 9 days shy of her 3rd birthday. Her Mum Shanell and Dad Jason were both with her when she took her final breath. My heart aches for them as I know the pain all to well. Life can be so […]
We had an appointment today with Professor Christian Kratz who is one of the new paediatric oncologists at Wellington Hospital. He has done some research into genetic links between myoepithilial carcinomas and other cancers and has come up with a documented link between Liams type of tumour and colon cancer. There is a bit of […]
The kids were invited to participate in the Wellington Christmas parade today. I must admit I was feeling abit lazy this morning (after a BBQ last night and the best part of 2 bottles of wine) and really wasn’t feeling like driving all the way into Wellington to attend. I am so very glad I […]
Hi! I have finally got the internet back up and running. Not having it for two weeks was very strange, I am not sure what we used to do before internet. The last week or so has been very busy. We went to Wellington Zoo on Saturday and got to meet the new Paediatric Oncologists, […]
Hi! Sorry I haven’t posted in a while (been told off by a couple of people!) but I have had my nose firmly entrenched in text books for the last week or so. I have gotten through 3 exams and have my last one this afternoon at 2.15pm. I will definitely be having a sneaky […]